FAQs
Empowering Brain Cancer Research through Tissue Donation
Frequently Asked Questions
Why is autopsy tissue donation important?
Who do I talk to about making an autopsy tissue donation?
To speak to someone about autopsy tissue donation, please call 1-844-456-GIFT or send questions to info@GiftfromaChild.org. You will be connected to a Gift from a Child Tissue Navigator. The navigator can answer any questions you have, and facilitate your child’s donation.
Can I speak to a family who has donated their child's tissue?
Yes. You can request to be contacted by one of our family companion volunteers on our Family Companion Page. These volunteers are all family members who have made the decision to donate their child’s post-mortem tissue are are available to answer your personal questions.
When do I have to decide about choosing to donate?
Written consent must be given prior to the child’s death and the greater amount of time the tissue navigator and medical team have to prepare, the higher the likelihood of a successful donation. Where you are located in the country can effect the amount of time needed prior to donation. Please discuss with a Tissue Navigator. 844-456-GIFT
What is a tissue navigator?
What arrangements need to be made in preparation for autopsy tissue donation?
What is the cost of donating autopsy tissue?
There is no additional cost to you or your family. Your donation is a gift that makes research possible. You will still have the funeral expenses you would otherwise have had without a donation.
Will my child look the same after the autopsy? Can we have an open casket?
Yes. You can have an open casket and you will not be able to tell that an autopsy has been performed. We recommend that you talk to the tissue navigator and your oncologist to confirm that this will be true for your child.
Can I choose an autopsy donation if my child dies at home?
How soon after death does the autopsy tissue donation need to happen?
How long does it take to perform the autopsy tissue donation?
Can I change my mind about donating autopsy tissue?
Can I choose where the tissue will go?
Where will my child’s tissue be sent?
To any lab(s) your family chooses. Additionally, Gift from a Child seeks to direct families to researchers who have the interest and expertise to work with autopsy tissue and the desire to share the data widely across the research community. There are currently six Centers of Excellence GFAC has partnered with as well as the Children’s Brain Tumor Network
What are the Centers of Excellence?
They consist of six labs affiliated with the CBTN. Tissue Navigators from each of the labs work together to facilitate donations throughout the country. Each of these labs has the expertise to process a whole brain donation as well as develop cell lines and mouse models from the tissue. A portion of autopsy tissue donated to any of these labs will be stored at CBTN’s biorepository in Philadelphia.
What is the Children’s Brain Tumor Network?
CBTN is currently the planet’s largest pediatric brain tumor database, including tissue and genomic data. It offers open-access, freely available data to researchers around the world. CBTN is made up of seventeen children’s hospital throughout the world.
It’s not my child, but how can I help?
How can I provide financial support for the work of Gift from a Child?
Where are the Centers of Excellence?
Children’s Hospital of Philadelphia
Dr. Jane Minturn & Dr. Mateusz Koptyra
Children’s National Hospital
Dr. Javad Nazarian
Ann & Robert H. Lurie Children’s Hospital of Chicago
Dr. Angela Waanders
Stanford University Medical Center
Dr. Michelle Monje
New York Presbyterian Hospital-Weill Cornell Medicine
Dr. Mark Souweidane and Dr. Jeffrey Greenfield
Orlando Health Arnold Palmer Hospital for Children
Dr. Amy Smith and Dr. Julia Hegert
Gift from a Child
Is a Swifty Foundation Program
Swifty is a recipient of the GuideStar Gold Seal of Transparency